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The Ribbon of Road Ahead: A Remarkable Journey with Parkinson’s Disease

February 3 @ 7:00 pm - 8:30 pm

At age 49, Carol Clupny was an active, driven woman who rode horses, climbed mountains and traveled the world.

As a successful speech pathologist, Carol was accustomed to helping others live their best lives. A mere year later, at the age of 50, she struggled to understand why she could no longer paddle a kayak or throw a ball for her dogs. Being passed from one doctor to another she finally received a diagnosis: Early-onset Parkinson’s disease. “Keep exercising, take your medication and you’ll have five to ten years before life gets difficult,” her doctor advised.

Carol’s response? She abandoned her recliner in order to get moving, walking over 1,000 miles on ancient pilgrimage paths in France and Spain and cycling across Iowa with the Pedaling for Parkinson’s team not once, not twice, but four times. On these journeys, Carol faced challenges she never could have foreseen, forged lasting friendships, and confronted the reality of life with a progressive neurological movement disorder.

Join us on Monday eveningFebruary 3, 2020 as Institute on Aging welcomes Carol to share her memoir, The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease.  From diagnosis to deep brain stimulation (DBS), Carol will illustrate how adversity in our lives can be overcome if we dare to choose an “attitude of adventure.” This event is for everyone: people with Parkinson’s, family members, health care professionals, anyone who has faced exceptional challenges in life, and those who just want to hear a good, inspiring story.  Continuing Education Units will be offered for this program (APA, BRN, CAMFT, MCLE)

Doors will open at 6:15 p.m. and Carol will begin speaking at 7. Her book will be on sale for $18 (tax included), cash and checks only. Carol will be thrilled to meet you in person and sign your book.

In addition to having written this book, Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative displays a natural style which many readers find uplifting.  Read more at  http://www.ultreiablog.org

PRAISE FOR The Ribbon of Road Ahead

“This book is a story of resilience, strength, and belief in oneself. Carol takes you on her journey suffering with Parkinson’s disease and her recovery after deep brain stimulation. She never accepts defeat. You will be taken in by her courage and her faith in God. Her book is a message of hope for anyone. It is a beautiful read.”—Claude Tranchant, Author, Boots to Bliss: The Intriguing Story of a 21st Century Pilgrim Who Walked the Way of Saint James

Rather than perching on a pedestal as the perfect person with Parkinson’s, Carol slips in the mud and gets up laughing at herself. Walking next to you, she listens carefully, offering her hand or her treasure, un-self-consciously showing how to take the next step along this ribbon of road ahead. Enjoy the trek.”– Nan Little, PhD, Author, If I Can Climb Mt. Kilimanjaro, Why Can’t I Brush My Teeth? Courage, Tenacity & Love Meet Parkinson’s Disease

 About Carol Clupny, MS:

Carol received a Masters of Science in Speech Pathology from Eastern Washington University and further certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and served as program director for 32 years in the wide geographic area of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association, and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences, and was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology.   She was selected by the Parkinson’s Foundation to provide leadership in planning a region wide forum of women with Parkinson’s. Recently, the Michael J Fox Foundation chose Carol to attend the National Parkinson’s Disease Policy Forum in Washington DC. Carol serves as a support group facilitator for Parkinson’s Resources of Oregon and is an ambassador for the Davis Phinney Foundation.  Carol and her husband Charlie have raised two boys, two horses and numerous calves (but no chickens) over the years on their small acreage in Hermiston, Oregon.

 “Living with the degenerative neurological disease, Parkinson’s, ULTREIA has become a word that guides me. I have chosen it as the name of my business, ULTREIA BOOKS. It comes from Latin and old French and means ‘unfailing courage.’ In the old days, pilgrims would call ‘Ultreïa‘ to each other as encouragement. It takes courage to live with Parkinson’s. May I face each day with unfailing courage.”  — Carol Clupny

Date and Time: Monday, February 3, 2020, 7 p.m. (Doors open at 6:15 p.m.)

Place: Institute on Aging, 3575 Geary Blvd., San Francisco, CA 94118

Parking: Limited street parking around the building. Public transportation is nearby.

Cost: $10, General Admission; $5.00 students and seniors (62+)

RESERVATIONS REQUIRED, IN ADVANCE, FOR ALL TICKET TYPES

Continuing Education for this program will be available at no extra charge (1.5 Continuing Education Units): APA; BRN; CAMFT (serves LCSW/MFT); MCLE.

Objectives:

As a result of attending this program, participants will be able to:

– Describe both the “identifiable” and “non-motor” symptoms of Parkinson’s Disease

– Analyze at least two traditional forms of treatment for Parkinson’s

– Analyze at least two alternative forms of treatment for Parkinson’s

Review at least two examples of evidence-based information which support the theory that a patient’s life choices and attitude can affect the progression of Parkinson’s.

 All Continuing Education certificates will be delivered digitally, within 5 working days of the event. An evaluation-test will be provided to all CE registrants, who must then attend the entire program and turn in their evaluation at the end of the program in order to qualify for a CE certificate.

Introductory Level: No prior knowledge of the specific content area is needed in order for you to participate fully and effectively in the workshop. The information or skills will be (or may be) new for those who enroll.

American Psychological Association (APA): Institute on Aging is approved by the American Psychological Association to sponsor continuing education for psychologists. Institute on Aging maintains responsibility for this program and its content.

Provider approved by the California Board of Registered Nursing (BRN), Provider # CEP13610, for 1.5 Contact Hours.

CAMFT: Institute on Aging is approved by the California Association of Marriage and Family Therapists to sponsor continuing education for this program. IOA maintains responsibility for the course and its content. Course meets the qualifications for 1.5 hours of continuing education credit for LMFTs, LCSWs, LPCCs, and/or LEPs. CAMFT provider number is #135377.

State Bar of California (MCLE) : Course meets the qualifications for 1.5 hours of continuing education credit for Attorneys (Provider #13264).

Funding for this program is provided by the JULIAN S. DAVIS, MD, LECTURESHIP FUND

Venue

Institute on Aging San Francisco
3575 Geary Boulevard
San Francisco, CA 94118 United States

Organizer

Institute on Aging

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